This skills building and support group is designed for individuals with Ehlers Danlos Syndrome (EDS) and/or Joint Hypermobility Syndrome (JHS). Topics will include active vs. passive coping, pacing, and navigating medical care with EDS/JHS and related conditions. Each session includes presentation of educational content, a brief coping practice, and group discussion about the experience of living with these conditions. Participation in this group will provide an increased understanding of EDS/JHS and its connection to chronic pain and related symptoms, practical strategies for pacing activity to maintain an active lifestyle while avoiding symptom flare-ups, and opportunities to connect with others living with the same condition(s).
Experiential Exercises:
This group incorporates a variety of brief experiential practices to help participants understand and manage the challenges of living with EDS/JHS. Practices are brief (3-10 minutes) and may include body scans, guided imagery, and gentle yoga-based movement.
| Type | Group Therapy |
| Format | Telehealth (sometimes in-person) |
| Duration | 6 weeks (90-min sessions) |
| Facilitated by | Health Psychologist |
| Home practice (time spent outside of group) | While specific home assignments aren't given, participants are encouraged to personalize and implement the activity pacing and coping strategies discussed to improve their daily living. |
| Insurance Based? | Yes |
| Referral | Osher Provider - as part of an integrative health plan |
FAQ
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This group is helpful for anyone living with joint hypermobility who would like to learn more about this condition and/or connect with others who share this experience.
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No, this group is not physically demanding. It's specifically designed for individuals with EDS/JHS, chronic pain, and related symptoms. We'll explore strategies for understanding your limits and pacing yourself to maintain activity without causing 'boom and bust' cycles.
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No, this group is introductory level, no prior experience is needed.
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Patients, to learn more about Moving Through Life with EDS/JHS, speak with your Osher medical provider or health psychologist.
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Yes, this group offers a valuable complement to existing pain management strategies and medical treatments by providing information about EDS/JHS and strategies for coping.